Like any couple, the Singhs were elated at the birth of their baby girl, Riya. Their faces lit up at the sight of her bright eyes and playful smile, and things seemed to be going well, until, they discovered that their baby suffered from craniosynostosis – a rare syndrome often diagnosed through the absence of a soft spot on the baby’s skull. This condition occurs when the bones in a baby’s skull join together before the brain is fully formed. As the baby’s brain grows, the skull can become more malformed, causing an aesthetic problem and sometimes, a restriction to brain growth.